Hopes of a lasting legacy from Malcolm’s plight
PUBLISHED: 13:17 09 August 2007 | UPDATED: 15:12 12 May 2010
BARBARA Pointon has appealed for her husband s legacy to be better care and treatment for people with dementia. Her words come after the screening last night (Wednesday) of the documentary Malcolm and Barbara: Love s Farewell. The documentary showed the l
BARBARA Pointon has appealed for her husband's legacy to be better care and treatment for people with dementia.
Her words come after the screening last night (Wednesday) of the documentary Malcolm and Barbara: Love's Farewell.
The documentary showed the last days of Malcolm's life as he battled against Alzheimer's.
Mrs Pointon, 66, who had been his carer over the years of his illness at their home in Thriplow, has issued a 10-point plan - Malcolm's Legacy - to improve the lives of 700,000 people in the UK with dementia.
Mrs Pointon said: "When Malcolm and I started our journey I had no idea what to expect.
"Little did we know the horrors and struggles that we had to face over 15 long years."
She said that now her journey was over all she wanted was a better future for those who will "follow him along this difficult road".
Mrs Pointon said she hoped that now people had seen the documentary they had come to understand the reason that "compelled" her and her husband to share their experience.
"We cannot afford to keep dementia in the shadows, hidden away from our day-to-day lives.
"I don't want the public's memory of Malcolm to be a few weeks of media headlines.
"I want it to be a lasting legacy for everyone affected by dementia," she said.
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